HISTORY

Sickle Life was founded in 2013 and registered and incorporated in 2016 as a non-profit LBG with the mission to educate the public about sickle cell disease and empower them to make informed decisions regarding the condition.

SCAI was incorporated in 2016. As a registered non-profit organisation, it sought to improve the health and well-being of people living with sickle cell disease through education, advocacy and support.

Dr Enam Bankas
Co-Founder

Nana Esi Duker
Co-Founder

Individually, both entities led mentorship, screening and health outreaches, support group and welfare initiatives and educational interventions, along with research, infrastructure and fundraising projects. They also prioritised participation and networking with local and international stakeholder groups.

Collaboratively, the organisations’ joint mandate was to significantly curb sickle cell disease related morbidity and mortality by running ongoing educational campaigns to inform the public about the intricacies of the disease, subsidising consultations and treatment and providing varying types of support to patients and families. Over the five years covering 2018 - 2022, the organisations’ joint interventions directly impacted over 150,000 people.

NATIONAL HEALTH ADVISORY COMMITTEE

The National Health Advisory Committee (NHAC) comprises senior clinicians, researchers, and medical professionals with demonstrated expertise in haematology and public health as well as caregivers with extensive personal and patient advocacy experience.

The NHAC provides expert guidance, shapes clinical direction, and supports programme development to ensure Heale initiatives remain evidence-based and clinically sound. 

The NHAC serves a renewable two-year term.

NHAC Members:

  1. Prof. Ivy Ekem - Adult Haem 

  2. Prof. Catherine Segbefia- Paed HaemOnc

  3. Dr. Vivian Paintsil-  Paed HaemOnc

  4. Haem Nurse Specialist Diana Dwuma-Badu

  5. Dr. Dilys Padi- Adult Haem

  6. ⁠Dr. Eugenia Asare- Adult Haem

  7. Dr. William Ghunney- Adult Haem

  8. Mr James Kwodwo Morgan- Caregiver 

BOARD OF TRUSTEES

The board of trustees comprises both founders of Heale, senior clinicians, researchers, and medical professionals and seasoned thought leaders with demonstrated expertise in finance, law and communications. 

The board of trustees provides strategic guidance and direction as well as executive, financial and accountability oversight and representation to support Heale’s work.

The board of trustees serve a renewable two-year term.